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RARE News
RARE News
Undiagnosed Day 2022
By admin
28 April 2022
Turning the tide for rare disease
A multi-centre registry for idiopathic pulmonary capillaritis
By CONTRIBUTOR
25 April 2022
Turning the tide for rare disease
Project Sebastian: a safe space for the rare disease community to talk, listen and connect
By CONTRIBUTOR
20 April 2022
Turning the tide for rare disease
The Akari Foundation – a light of hope for people with DMD in the Hispanic community
By CONTRIBUTOR
11 April 2022
RARE News
California mental health initiative to fight hidden sickle cell symptoms
By admin
8 April 2022
Turning the tide for rare disease
Riding the wave of medical research to find a cure for Ellie
By CONTRIBUTOR
6 April 2022
Rare insights
Medics4RareDiseases joins forces with Bionical Emas to launch new online training
By admin
5 April 2022
Patient voice
Redefine: Max Feinstein’s concept album inspired by his life with haemophilia
By CONTRIBUTOR
4 April 2022
Rare insights
National charity MPS Society encourages the public to spread awareness about rare genetic disease
By admin
4 April 2022
Medical
What can we learn from European rare disease policies to future-proof our health systems?
By CONTRIBUTOR
4 April 2022
RARE News
Global non-profit CureDuchenne announces futures national conference for the Duchenne muscular dystrophy community to be held May 27–29
By admin
1 April 2022
Patient voice
MNGIE: Verity Grainger’s mission to raise funds for a life-saving therapy
By CONTRIBUTOR
30 March 2022
RARE News
Mental health and care navigation top list of needs for people living with neurodegenerative diseases at Adira Foundation congress
By admin
28 March 2022
Turning the tide for rare disease
Time for action
By CONTRIBUTOR
28 March 2022
Turning the tide for rare disease
The Global Genes Rare Disease Equity, Diversity and Inclusion Report: the glimmers of hope
By CONTRIBUTOR
23 March 2022
Turning the tide for rare disease
Libmeldy gene therapy offers a lifeline to children with leukodystrophy and gives hope to the rare disease community
By CONTRIBUTOR
23 March 2022
RARE News
Mississippi becomes first state in 2022 to sign newborn screening legislation
By admin
17 March 2022
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