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RARE REV-inar
RARE REV-inar
Gene therapies: a new age of care in rare diseases?
By editor
14 June 2023
RARE News
Cure Mito Foundation launches resource on Leigh syndrome
By admin
9 June 2023
Charity & advocacy
Global Genes and Cure JM Foundation: expanding mental health support for the rare disease community
By CONTRIBUTOR
7 June 2023
RARE News
DNA sequencing in newborns reveals years of actionable findings for infants and families
By admin
5 June 2023
RARE News
Global Genes’ RARE-X issues open call to researchers to participate in the Inaugural Xcelerate RARE Challenge
By admin
31 May 2023
Patient voice
Together—every step
By CONTRIBUTOR
31 May 2023
RARE News
American Kidney Fund will host cystinosis camp as part of national virtual camp for children and teens with kidney disease
By admin
25 May 2023
A day in the life
A day in the life: Cathy Moughton, PSPA helpline care navigator
By CONTRIBUTOR
24 May 2023
Charity & advocacy
GACI Global: circulating hope for families affected by a rare genetic disease that primarily affects the circulatory system
By CONTRIBUTOR
17 May 2023
Patient voice
Generalised arterial calcification of infancy (GACI): Ruben’s story
By CONTRIBUTOR
17 May 2023
RARE News
The Muscle Help Foundation launches 20th anniversary celebrations
By admin
16 May 2023
RARE News
Global Genes announces partnership with CureJM Foundation to expand support in rare disease community for mental health-related challenges
By admin
16 May 2023
RARE News
The Twin Run – supporting high-risk multiple birth parents and twin research
By admin
12 May 2023
Turning the tide for rare disease
Changing the landscape for the differently-abled community one smile at a time. Dr Sai Kaustuv is our RARE Inspiration
By CONTRIBUTOR
10 May 2023
RARE News
CureDuchenne partners with PicnicHealth to advance research and simplify patient experience by incorporating electronic health records into data-integrated biobank
By admin
5 May 2023
Industry Insights
COVID: Three years on—what has changed?
By CONTRIBUTOR
3 May 2023
RARE News
Specialty pharma expert adopts name of global parent to reflect breadth of offer that brings a rare and special perspective to the market
By admin
2 May 2023
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