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RARE News
RARE News
Sickle cell disease is not a joke
By admin
19 December 2023
RARE News
Sickle Cell Disease Association of America Inc. statement about gene therapy approval
By admin
15 December 2023
RARE Ramblings
Richard’s RARE Ramblings: Winter is coming… and I am ecstatic!
By CONTRIBUTOR
13 December 2023
RARE News
PSPA celebrates after receiving £164,000 National Lottery funding to help people living with PSP & CBD
By admin
13 December 2023
RARE News
Worthing couple take part in cooking challenge supported by celebrity chefs to raise funds for Muscular Dystrophy
By admin
8 December 2023
Science & tech
The Undiagnosed Diseases Network’s mission to eradicate the diagnostic odyssey: an interview with Sarah Marshall
By CONTRIBUTOR
6 December 2023
A day in the life
A day in the life: a medically complex condition that is as unpredictable as the weather
By CONTRIBUTOR
29 November 2023
Charity & advocacy
Thoughts into Action: What is quality of life as defined by people living with inherited metabolic disorders?
By CONTRIBUTOR
22 November 2023
RARE News
CureDuchenne raises more than $1.3 million at ninth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy
By admin
16 November 2023
Charity & advocacy
Shining a light on Smith-Magenis syndrome
By CONTRIBUTOR
15 November 2023
Science & tech
What is a flare in Sjögren’s? TREND Community’s innovative use of artificial intelligence to find answers for the community
By CONTRIBUTOR
8 November 2023
RARE News
Exciting news: $100,000 in funding for Myhre syndrome research projects
By admin
7 November 2023
RARE News
Rare Stories initiative illuminates lives in Northern Ireland rare disease community
By admin
2 November 2023
Patient voice
Fostering a positive mind and body
By CONTRIBUTOR
1 November 2023
RARE News
Pilbara Rare Care Centre to open in remote Western Australia
By admin
31 October 2023
RARE News
CureDuchenne welcomes new executive director, vice president of medical affairs, and board members
By admin
25 October 2023
Patient voice
Let’s talk about sex, baby!
By CONTRIBUTOR
25 October 2023
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